D8.3 Brief on findings of ELSI focus groups for a RWE approach to AD

This deliverable reports results from:

  1. An updated literature review on empirical research into patient and publics attitudes to the secondary use of data. (Initially was completed as part of deliverable 8.2.)
  2. Findings from two focus groups conducted with people with dementia and their supporters to understand patient and carer attitudes towards the ethical, legal and social implications of a real world data platform for Alzheimer’s disease.