The ROADMAP Consortium has already published a number of peer-reviewed publications and is working on a range of further papers that are soon to be published in a variety of journals. All of these are – respectively will be – available through ROADMAP’s publication repository. Click on the following link to find those already available and make sure to follow the project page to be among the first to receive updates: https://www.researchgate.net/project/ROADMAP-Real-world-outcomes-across-the-AD-spectrum-for-better-care-multi-modal-data-access-platform

The publications include:

• Challenges for Optimizing Real-World Evidence in Alzheimer’s Disease: The ROADMAP Project – published in Journal of Alzheimer’s Disease
• Real-world evidence in Alzheimer’s disease: The ROADMAP Data Cube

Outcomes Team

• Priority outcomes for Alzheimer’s Disease in European Health Technology Assessments
• Involving people with dementia, carers and professionals in the development of the ROADMAP data platform
• What Outcomes Matter to People with Dementia, Their Carers, and Professionals? Insights from ROADMAP Survey
• Identifying a priority set of stakeholder relevant outcomes: a mixed methods analysis
• What outcomes are important to patients with Mild Cognitive Impairment or Alzheimer’s disease, their caregivers and healthcare professionals? A systematic review – published in Alzheimer’s & Dementia: Diagnosis, Assessment & Disease Monitoring 

Real-world evidence team

• The utility of digital technology in Alzheimer’s disease medicine
• Epidemiology of dementia: prevalence and incidence estimates using validated electronic health records from primary care –  published in Clinical Epidemiology
• How well can electronic health records from primary care identify Alzheimer’s disease cases? – published in Clinical Epidemiology

Health Economics team

• Measuring quality of life of people with predementia and dementia and their caregivers: a systematic review protocol – published in BMJ open
• Resource utilisation and costs in predementia and dementia: a systematic review protocol – published in BMJ open
• Systematic literature review of methodologies and data sources of existing economic models across the full spectrum of Alzheimer’s disease and dementia from apparently healthy through disease progression to end of life care: a systematic review protocol – published in BMJ open
• Health-related quality of life in people with pre-dementia or dementia measured with preference based instruments: a systematic literature review
• Resource utilization and costs in pre-dementia and dementia – a systematic literature review
• A systematic literature review of health economic models across the full spectrum of Alzheimer’s disease and dementia
• Obtaining EQ-5D-5L utilities from the disease specific Quality of Life Alzheimer’s Disease Scale: Development and results from a mapping study
• Health-Economic Modelling for Alzheimer’s Disease: Expert Perspectives
• Inter-observer variance with Philips’ checklist when assessing the quality of economic models

Regulatory and HTA engagement team

• Regulatory and Health Technology Assessment Considerations for Disease-Modifying Drugs in Alzheimer’s Disease – published in CNS Drugs

• Alignment of European regulatory and health technology assessments: a review of licensed product’s for Alzheimer’s disease – published in frontiers in medicine

Ethical, Legal and Social Implication team

• Clinical trial data sharing: Justifications for increased transparency and access to data in four general medical journals
• A protocol (published in BMJ open) on, as well as a systematic review of; “Ethical and social implications of using predictive modeling for Alzheimer´s disease prevention: a systematic review”
• Trust, Protection and Engagement: The views of the European Working Group of People with Dementia on the sharing and re-use of health data
• Manuscript on reviewing justifications for greater sharing, transparency, and access to clinical trial data
• A Landscaping paper on ethics of outcome prioritisation in AD treatment: “Health outcome prioritisation in Alzheimer’s Disease: understanding the ethical landscape”